A platform for advocacy, publications, and awareness focused on continuity of care and therealities facing caregivers and individuals with complex needs.
This site highlights lived experience, system navigation, and the impact of the caregiver cliff.

The caregiver cliff refers to the point where care provided by family can no longer be sustained,and there is no system in place to carry that care forward.
The caregiver cliff refers to the point where care provided by family can no longer be sustained,and there is no system in place to carry that care forward.
This creates a growing gap between need and support.
Mason is 23 years old and lives at home with his family. He is impacted by autism, epilepsy, and developmental delays. Mason is nonverbal and communicates using Proloquo2Go, PECs, pointing, signs and by bringing items to others.
He has a good sense of humor if you can pick up on his nonverbal communication and his laughis contagious. Mason thrives when his environment and days are structured (2:1 care), as he enjoys the outdoors, recreational activities, and being involved in the community.

Individuals who require ongoing, high-level support are living in environments that are notdesigned to meet their needs.
Care is being managed by families without consistent, structured support systems in place tocarry it forward over time.
There is a gap between the level of care required and the environments available to support it.
This reflects an idea developed over years of lived experience raising Mason and understandingthe realities of long-term care.
